Additionally, the collaboration between the groups will provide proof-of-concept for a model of decentralized biological studies that are convenient, easy, and economical for researchers and participants alike. Here, Quest’s national network of more than 2100 patient service centers will enable participants to conveniently provide periodic blood samples. SARS-CoV-2 serological immunoglobulin antibody and T-cell testing used to determine COVID-19 antibody response will be provided by Quest, in addition to a decentralized clinical trial model. 1 "We have had a long and productive collaboration with Accelerated Cure Project and its iConquerMS network and we're looking forward to working with them and with Quest Diagnostics on this important project." "Understanding the immune response to the COVID-19 vaccine doses in a longer-term study in people with MS will provide tremendous insights into not only optimal vaccine dosing for this population, but it will shed light on how vaccines may affect people with immune disorders or who are taking immunomodulatory therapies," Bruce Bebo, PhD, executive vice president, Research, National MS Society, said in a statement. In total, the study will gather patient-reported survey data on 300 participants from the original 1600-person study. Behind the project is ACP’s iConquerMS People-Powered Research Network, for which members will have input on research questions for the study. The research project is a substudy of the larger COVER-MS Project, and was announced in a new partnership between Accelerated Cure Project (ACP), Quest Diagnostics, and the National Multiple Sclerosis Society. Thank you for being a participant in iConquerMS™! We look forward to keeping you up to date with the progress of iConquerMS™ in future issues of this newsletter.Through a new collaborative effort, a group of investigators will assess immune response to COVID-19 vaccinations in patients with multiple sclerosis (MS), with the goal to learn how the number and timing of vaccine doses effects antibody levels and duration in the disease. or 10,000 people have power?' At ACP, we believe that each individual - those living with MS, their loved ones, and friends - has huge power to make a difference, and we invite everyone to use that power against MS. The iConquerMS™ welcome video asks: 'Can one person have power? Can 10. Combined, these two initiatives are a powerful force for conquering MS. Our recently launched OPT-UP study is a clinic-based research investigation into the best uses of MS therapies and the causes of progressive disability in MS. iConquerMS™ is a large-scale online research initiative, in which data of all kinds are contributed by people with MS to fuel discovery. Uses social media and other digital tools to enhance and sustain an online community for participants.Īccelerated Cure Project for MS, or ACP, has created two unique and complementary research initiatives.Leverages 21st century information technology tools to integrate and analyze the 'Big Data' that is collected, to maximize its research potential.Is seeking an unprecedented level of diversity among participants.Is collecting an extensive breadth and depth of information from people with MS.Is connected to a nationwide network of MS clinics, who are contributing time, resources, and expertise.Is part of a national research network, and has financial support of the Patient-Centered Outcomes Research Institute.Has a governance structure with a majority of members who are people living with MS, and guidance from these individuals comes via a Governing Board as well as Research, Communications, and Membership committees.IConquerMS™ is building on the learnings from prior research endeavors - we stand on the shoulders of those who have come before us - to achieve the following unique attributes. iConquerMS™ is woven into the fabric of PCORI's new national research network as a Patient-Powered Research Network. This initiative has the financial support of the Patient-Centered Outcomes Research Institute (PCORI), an innovative enterprise mandated by the U.S. iConquerMS™ is building a bridge between those with the disease and the research community that we hope will lead to new knowledge and improved outcomes for all those living with MS. The bold mission of iConquerMS™ is to drive a new generation of patient-powered research into the causes and symptoms of MS, to better understand the effectiveness of current MS treatments, and to answer many questions that are important to people with MS. On November 23, 2014, the portal was officially launched, open to all who live with multiple sclerosis and their loved ones and friends.
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